Paying It Forward Part II- New Year and Purpose

A 35 day plus government shutdown- working WITHOUT PAY, couldn’t stop our hearts from giving! Thanks to tremendous donations from our family and friends during the holidays and coordination with March of Dimes we were able to bless our 1st NICU Home on Saturday, INOVA Fairfax. We provided NICU families with a hot catered meal from Nando’s Peri Peri- our favorite local place while in the NICU.

A little bit of compassion and empathy can go a long way on this journey! We will never forget, which is why we are compelled to pay it forward! We pray this will be an annual event for us.

We were blessed by other moms, dads, and grandparents sharing their current NICU journeys with some intimate details of the hardship they are enduring… Their tears, hugs, laughter, and even a few smiles humbled us in so many ways- we could truly relate. Some parents had babies only a couple days old, but thankful to have a meal that they didn’t have to pay for or go far to get. All NICU parents want is to be with their babies!

Nia’s journey provided some comfort to the parents… You could see some of the fear, worry, and anxiety in their eyes thinking of their own babies, but our story gave them a little bit of hope and reassurance. When the situation looks dire, God can turn it around in an instant. To know our baby should have been DOA, but she is thriving 16 months later is truly miraculous. We pray that the parents we encountered on Saturday will be able to take their babies home in the next weeks or months.

We are on a mission to transform healthcare for babies, mothers, and fathers enduring long hospital stays or complex medical care through advocacy, knowledge, storytelling, and provider and patient engagement! Paying it forward is just a piece of this.

Peace and Blessings!

Erica

Erica, Antoine, and Nia

Link to Paying it Forward- Part I

https://niasjourney.com/2018/12/25/paying-it-forward-tis-the-season/

One Year NICU Graduation Anniversary Reflection- Nia’s Homecoming Day 01.24.2018

It’s been exactly one year (okay and one day) since Nia graduated from the NICU, Wow! Time surely does fly!

We are so grateful for this milestone. It’s fun seeing life in hindsight… I am still in awe of our miracle, and God’s miraculous works. According to science, Nia really shouldn’t be here and she almost wasn’t going to be… but God!!! Thinking of Nia’s Journey til this day still brings me chills- wow! The even more amazing part is that she is imperfectly perrfect. Through her rare dwarfism we’ve been humbled. Although this journey is not the parenthood assignment we initially wanted, it’s the assignment we needed- God chose us!!!

She is beauty, she is love, she is sweet, she is intelligent- seriously, she is funny (actually really hilarious). Beyond all those things our baby girl is here a year later, post 118- day NICU journey and thriving beyond any clinicians dreams (prognosis).

Nia has touched so many lives including ours. She has transformed us in ways we never imagined. Personally, I am on a journey to spread love, advice, knowledge, and awareness on navigating the healthcare system and complex medical needs. Who knew our journey would put us in a position to bless other families in this last year! Wow!

Nia’s journey has blown our minds. While we’ve had some unexpected setbacks we’ve had some unexpected blessings as well!We couldn’t be more grateful for our sweet angel!

Cheers to 1 Year Post-NICU Life!!! Nia will forever be a true #NICUWarrior

And we know that in all things God works for the good of those who love him, who[a] have been called according to his purpose. ~Romans 8:28

Blessings!

ELS

Erica, Antoine, and Nia


1 Year ago January 24, 2018

Picture on the left first day home and pic on right one year (and a day) home!

January 24, 2019 💚💚💚💚