I am thankful for the breath of Life and Thanksgiving Outside of the NICU ππΎππΎππππππ
Thanksgiving last year we split our time between attempting to celebrate our blessings at home and then making our way to be with Nia in the NICU.
We are so incredibly thankful for a sweet friend that brought a whole Thanksgiving Dinner to us during our NICU journey last year! Alexis and Jeff W- we love you all!
As I write this post, I am incredibly emotional as this is another milestone for us! We are home this year for Thanksgiving and all together. We woke up this morning with sleeping arrangements a little different from most parents with a toddler. Since our home health Nurse called out last night, Antoine and I had to camp out on Niaβs bedroom floor so she could sleep in her own bed. Our journey doesnβt allow the freedom for Nia to sleep alone without being monitored! Yes we have a camera/monitor in her room! Antoine is an Engineer and gadget guru π€£π€£π€β€οΈ BUT we have to make sure Nia doesnβt flip over and put her entire face in her mattress. So before we went to sleep we had to place her pulse oximeter on. Nia fell asleep before her Triology/CPAP could be put on- so we just winged it and let her be- back to us being dubbed as the #WingitParents because of this journey. We donβt always follow the rules or doctorsβ orders every night- and just thankful today we donβt have to since Nia is a little stronger! So no machine last night but we made a pallet on the floor instead to hear her breathe and not solely rely on a machine to tell us if her oxygen saturation or heart rate dropped too low!
Our Thanksgiving Morning 2018! Pallet and Pulse Oximeter- the simple things!
Thanksgiving 2018- we are thankful for our eternal God allowing us the gift of life- birthing and parenthood experience beyond the walls of the NICU. We will never take it for granted! We are thankful for Niaβs medical equipment and devices- Infinity Feed Pump, syringes, g-tube (Mini one profile), g-tube extensions, bolus and gravity feed. Gravity feeds are lifesaver on time when we are exhausted- thank you Antoine for being risky and trusting that Nia can handle it. We are thankful for Lasix, which helps prevent fluid build up around Nia’s heart and lungs with her congenital heart defect. We are thankful to be able to continue to produce breastmilk as an exclusive pumper- 13.5 months postpartum! πππ
We are thankful for Niaβs triology/CPAP which expedited her discharge from the NICU at duPont Children’s. We are thankful for Niaβs expert medical team including the local DMV team- her pediatrician is a jewel and rockstar; duPont Children’s (NICU and Cardiac Center) and expert cardiologist in Lancaster, PA! We love you all! We are even thankful for INOVAβs NICU team for taking care of Nia for the first two months of life (despite some mishaps and frustrations along the way)! Much love to Dr. B and some of our NICU nurses- now forever friends!
We are thankful for our new family and friends weβve made in the NICU at INOVA Fairfax and duPont Children’s Hopsital! What an awesome and amazing blessing seeing our babies a year later and watching other amazing Warrior parents in action advocating for their precious gifts too!
My emotions are raw and real and canβt help but think of the families that have lost loved ones and precious babies that may have never experienced life outside of the hospital! We love you all and truly thinking of you today! Our hearts ache for you- because we understand all too well the fragility of life! One minute things can be fine and the next minute things go south- we’ve been there- Nia coded twice right after Thanksgiving last year! Please know that your are loved and not alone! We see you and you can reach out anytime- morning, night, overnight!
All I can say is God what a difference a year makes! We couldnβt have made it without your divine intervention- Godβs grace and mercy brought us through and continues to do so- even through frustration, pain and chaos! Death was for certain for our sweet Nia- #ButGod #MadeAWay
Itβs not about all the food we can eat today but about the unwavering love God has shown us and the insurmountable strength He has given us along this journey! We are thankful for every single moment we get to be Niaβs parents here on this Earth!
Happy Thanksgiving! Be Thankful for the small things! #NiasJourney #ButGod
I will give thanks to the LORD with my whole heart; I will recount all of your wonderful deeds. ~Psalm 9:1
Pics from Thanksgiving 2017
Thanksgiving Morning 2018- Beautiful Nia asleep in her own bed #FearfullyandWonderfullyMade
This post is dedicated to all NICU, Cardiac ICU, and parents that have lost their sweet babies too soon! Today is not easy as you see posts of new gifts of life at home or out and about, and you are sitting in the hospital by your babyβs side instead OR having to relive the wouldβve, couldβve of the life you yearned for your heavenly angel babies to be! Love you all! Sending hugs and love your way! ππππβ€οΈβ€οΈβ€οΈ
Blessings,
Erica, Antoine, and Nia
What a beautiful reflection on this Thanksgiving Day. May the Lord continue to strengthen you all on your journey! Your faith and testimony encourages, inspires, comforts and reminds of what really matters in a world that takes so many things for granted. Happy Thanksgiving!! ππ¦ ππΎππ§‘π
LikeLiked by 1 person
Happy blessed Thanksgiving. Loved how y’all stepped out on faith last night.
#niastrong2018
LikeLiked by 1 person
As always, this is such an inspirational message. Love yβall!
LikeLiked by 1 person
*such an
LikeLike
*My toddler snatched the phone and sent my previous comment before I could finish
This was such a beautiful reflection and reminder of what truly matters during the holidays. Speaking from experience as a NICU mom, thank you for this reminder to count my blessings and continue to be thankful that God still made a way for me when all hope was lost.
LikeLiked by 1 person