1st Year Open Letter to My Miracle Baby Girl- Nia Alexandria! Happy Birthday!!🎂🎉🎈

Nia this 1st year of your life has been an incredible journey- one that only God Himself could’ve written. When I first knew you were created in my womb- my perspective on life change immediately!! Mommy was so happy- that I ran downstairs to tell your dad while he was in the shower- that we were going to be parents!!! Little did I know our parenthood pregnancy journey would be an experience of a lifetime! You showed us early there was nothing textbook about you- including being able to wave at 12 weeks in my womb! 🤣

September 27, 2017 is one day I will never forget- your birth wiped away my 17 weeks (your initial diagnosis date- June 1, 2017) of tears and broken-heartedness at the thought of losing you! Nia we are sorry in some ways because we had prepared for your death and burial, while still believing in God’s miraculous works! See God used your dad’s dream to save you- because we had made the appointment to terminate you, not because of lack of faith but going along with the textbook medical expert answer! But Again you proved not to be anything of a textbook!

The way you decided to cry on your birthday was your way of telling me- mommy I am fearfully and wonderfully made! I am your imperfect perfection! Dwarfism doesn’t define me mama! Don’t be sad! I am here…and my God you are here!

My heart broke initially knowing you had a form of dwarfism- as I had prayed to God before you were formed to NOT have a small/short baby. This prayer went unanswered from God because He truly wanted to show me how tough I could be even in the midst of my brokenness . Not many people witnessed my physical, mental, or emotional pain from your prognosis!

I want you to know, this prayer was not because I don’t love all of me (and you) including my height, but more so the world/society has a way of cracking jokes and making you feel less than if you are of certain physical stature. God gave me exactly what I thought I didn’t want or need. He made me face my fear and hidden insecurities head on. I blamed myself for your condition- but then quickly realized your dad (even at 6ft 2 in) had this special gene change and I just so happen to have an unknown magical gene change as well that gave us beautiful you! We are the perfect storm together and you are our lightening strike! 😍

Was I angry initially yes, because I was ashamed and didn’t want the world to judge you for your physical appearance and you have to endure the stares and judgement of others! Everyday, I am getting better at accepting your condition- and realizing how amazing you are- you are perfect! I love all your 12 fingers and ten toes, and Hawaiian Silky Hair! You are truly a doll- and broke the mold of what a “little baby” should/would look like! I no longer shed tears for your condition, but cry because you are all mine (and your dad’s), and of course God’s beautiful creation!

My heart and psyche have endured so much in this last year (and a half), but your smile and tenacity have kept me! Your birth brought me joy, yet your NICU stay brought a complicated sense of joy and pain in ways I never imagined! Mommy fought so hard for you- and vowed to protect you! I maintained survival mode and strength because your name spoke every thing about you- Purpose baby! I didn’t know that I needed you honestly, until I Needed you! The day you stopped breathing, my heart couldn’t fathom the thought of losing you- again!!! So grateful that God understood as well! 💗💗🙏🏾😘

You really have brought so much love and happiness to your daddy and I! Your spirit and journey have touched so many and we pray that you continue to bring light into this world!

You have defied the odds even developmentally- though you are g-tube fed, everyday you work to take more and more food by mouth while mommy continues to pump liquid gold into your tube!

It looks like you might skip crawling and will instead just walk! Wow! I am sitting on the edge of my seat waiting for you to just take off one day soon! I remember your milestone of smiling back at me for the first time, and when you decided to sit up on your own right before you turned 8 months- and considering you had an almost 4 month NICU stay! Your claps and hello waves are just too much for me!

Nia though you may be small in statue- according to society’s “normal” standards you are truly anything but that! You are strong, you are big, you are smart, you are mentally tall! I am here to witness you break glass ceilings and continue to fall outside of the textbooks! You aren’t your condition- you are fearfully and wonderfully made!

The world will know you beyond Ellis-van Creveld Dwarfism! As your mommy, I may not have a medical condition, but I too am petite and fierce- so I will be sure to lead by example to help you navigate life’s challenges! You won’t hear “can’t” from mommy or daddy! We may just have to improvise along the way!

You are loved by so many so I know there will be many to cheer you on! Just know that mommy and daddy will ALWAYS be your Number 1 supporters!

I never knew love like this until I had the chance to feel you grow from the inside out!

Nia Alexandria you are 1, you are 1!!!! I am in complete awe that we are celebrating an almost unimaginable milestone just a year ago! I love you “Doll Baby.”

And we know that all things work together for good to them that Love God, to them who are called according to His PURPOSE! ~Romans 8:28

For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. ~Jeremiah 29:11

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. ~Psalm 139:14

A person is a person, no matter how small! ~ Dr. Seuss

Though she be but little, she is fierce! ~William Shakespeare

Love,

Mommy (ELS)

Author: Nia's Journey

Mother of a Miracle Warrior Baby Girl! Her name is Nia Alexandria! Nia's Journey has given me a completely different perspective on life! I pray her journey blesses others along the way- follow me @nias_journey (Instagram) and www.niasjourney.com

12 thoughts on “1st Year Open Letter to My Miracle Baby Girl- Nia Alexandria! Happy Birthday!!🎂🎉🎈”

  1. Nia, you will change the world some day. You’ve already unknowingly touched so many lives. And Erica, you’ve already helped others navigate through a similar or same diagnosis. You are brave to use your platform to bless others. Love you both!

    Liked by 2 people

  2. OMG this is absolutely beautiful. I am in tears reading this. Erica, God has purpose for her and she’s gonna make her mark on the world! I pray that God bless you and your beautiful family with an abundance of knowledge, understanding, love, wealth, strength, and happiness because you guys definitely deserves it. Your beautiful little doll is a fighter and she’s definitely loved…..I’ve never met her but I have a whole lot of love for her! My prayers are with you during Nia’s Journey. Happy Birthday Baby Doll!!! The world is yours! ❤️❤️❤️❤️

    Liked by 1 person

  3. Happy 1st Birthday beautiful baby doll Nia. I can see your vivacious personality already . It is obvious that you have been a strong fighter from conception. God gave you that amazing strength among so many other great qualities. I love you sweet Nia.💕💖💞

    Liked by 1 person

  4. Oh, Erica, J am in tears. This letter is so touching and absolutely beautiful! Nia, you are one tough little girl! May God continue to bless you and your amazing parents. Mommy, thank you for sharing Nia’s story. It has truly been a blessing watching her grow! Happy🎉1st Birthday to you!💗

    Liked by 1 person

  5. Happy 1st birthday beautiful Nia & happy 1-yr “birthing” anniversary beautiful mommy!

    Nia has already changed the world, one day at a time! I pray she will know the impact she (& her equally fierce & fearless mom) have had on so many lives.

    I will be there to see her walking tall & in charge, alongside the amazing duo she chose as her parents! Thank you for being a blessing to me & sharing your miracle with us 😘💖

    Liked by 1 person

  6. Erica and Antoine, THANK YOU for sharing your journey with the world. Thank you for putting Nia in the forefront to let her natural light shine. You have shared your unique journey and I love you even more for it.

    God has blessed you with talents that Nia is reaping the benefits of. You are a creative and engaging writer who shares your family’s testimony with a broad audience. Your unwavering faith has continued to prove that God is KING and rules over all. Thru Him all things are possible, despite what the medical experts predicted. Antoine trusted God and had the open heart to share his dream with you.

    Many couples would not have been able to withstand the difficulties of your pregnancy and Nia’s nontraditional infancy. God specially chose you two to embrace this and to envelope her with your love that only the two of you could give.

    I cried tears of compassion and empathy when I started reading this open letter. By the end though, I was streaming tears of joy and pride…joy for the happiness that becoming a mother has brought you…and pride for the woman, wife, mother, daughter, and sister that you are. I LOVE YOU GIRL! xoxoxo

    Liked by 1 person

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